We are almost at the 5 week point in Jonah's recovery from his brain surgery. I was trying my hardest not to get excited about the possible "extra" benefits that can occur from Jonah's surgery. We were told that children who have this surgery done will sometimes see a relief in their sensory issues. It is not a given that this occurs, but it has been seen in a lot of cases. However, at this point we should have already started to see a change. There has been none. This would have been such a blessing to our daily family life. We really pick and choose our family activities due to the sensory overload that can occur for Jonah. It makes it miserable for him and us if we don't consider it.
I feel awful right now that I am not rejoicing in the recovery he HAS had. We have been so blessed with an amazing medical team and an almost (needed steroids for meningitis) flawless recovery. His wound has healed quickly and he is not experiencing frontal lobe headaches that can be a side effect of this surgery. Praise Jesus!
My continued prayer for myself is "God please grant me grace". I will continue to find the light and hope in my selfish disappointment. I am forever grateful for healthy children. Please help Jonah to find the joy in everyday activities. That he will not be so overwhelmed with crowds, but to find peace and comfort in our arms.
An update on Peyton:
I took her to Chapel Hill University Hospital last week for a second opinion on her hearing. They are truly the best of the best. I have found that a lot of families have been misdiagnosed in Charlotte with hearing issues.
Chapel Hill has scheduled surgery for Peyton today at 7:30am. She will be having tubes put in for the third time to help keep her ears clear of fluid. While she is under they will be performing an ABR hearing test. It is the most accurate way to measure her hearing. She has always been diagnosed with the left ear being severe. When we moved to Charlotte we were told her right ear was also going, and that she needed hearing aids. This test will confirm if we should continue to aid her or to discontinue their use. She seems to hear fine without them. We are not sure if her hearing (especially the left one) has been healed by God's good grace or if it is just the right one that was misdiagnosed when we moved here? Either way, we are thankful for all things, and praying for a flawless surgery.
I feel awful right now that I am not rejoicing in the recovery he HAS had. We have been so blessed with an amazing medical team and an almost (needed steroids for meningitis) flawless recovery. His wound has healed quickly and he is not experiencing frontal lobe headaches that can be a side effect of this surgery. Praise Jesus!
My continued prayer for myself is "God please grant me grace". I will continue to find the light and hope in my selfish disappointment. I am forever grateful for healthy children. Please help Jonah to find the joy in everyday activities. That he will not be so overwhelmed with crowds, but to find peace and comfort in our arms.
An update on Peyton:
I took her to Chapel Hill University Hospital last week for a second opinion on her hearing. They are truly the best of the best. I have found that a lot of families have been misdiagnosed in Charlotte with hearing issues. Chapel Hill has scheduled surgery for Peyton today at 7:30am. She will be having tubes put in for the third time to help keep her ears clear of fluid. While she is under they will be performing an ABR hearing test. It is the most accurate way to measure her hearing. She has always been diagnosed with the left ear being severe. When we moved to Charlotte we were told her right ear was also going, and that she needed hearing aids. This test will confirm if we should continue to aid her or to discontinue their use. She seems to hear fine without them. We are not sure if her hearing (especially the left one) has been healed by God's good grace or if it is just the right one that was misdiagnosed when we moved here? Either way, we are thankful for all things, and praying for a flawless surgery.
0 comment(s):
Post a Comment